My brother was tested Thursday for PKD. He wanted to donate to my dad and had to be tested to go forward. My mom, grandma and me went with him, even though he wouldn't know right away we wanted to be there for support. I would want people with me. I was nervous while driving to the hospital. I was nervous for him. I was nervous for our family. I was nervous for what would happen if he did or didn't have PKD. If my brother didn't have PKD he could donate! It would mean a kidney for my dad! It would mean my big brother would have surgery to give my dad a kidney. That's HUGE. If my brother had PKD he couldn't donate to my dad...and he would be diagnosed with PKD, like my grandfather, like my dad and uncle. A five minute sonogram would determine alot.
We found out Saturday that my brother has PKD.
I am so pissed my brother has this. He is so optimistic and was so ready to doante. He said "when we find out and I'm clear let's get the hacksaw out and do the transplant now." And here is how it happened. The nephrologist called my dad! They didn't even tell my brother. They told my dad. My dad had to call my brother and tell him!
Monday, December 24, 2007
Monday, December 3, 2007
Donor backout
I have some bad news, our donor backed out. I think it's for the best. The donor for my dad was an ex-boyfriend of mine. Yeah, you can imagine the situation..
We have been broken up for five years. He kept intouch with my mom more so than with me. We knew he was a blood and antigen match and he only had to go thru a few more tests. I hope it wasn't my fault he backed out. He said it was because his family wasn't giving him the proper support (maybe because we used to date and his family didn't like the idea) and he hadn't accrued enough vacation days at work. Besides, I wouldn't want someone donating, who's family didn't support him. I understand. It's for the better. Some people thought my ex-boyfriend was doing it for the wrong reasons, maybe he was. I'll never know, but it doesn't matter now. Our family has to focus on finding the right donor.
My dad's has someone who is willing to look into paired donation.
We have been broken up for five years. He kept intouch with my mom more so than with me. We knew he was a blood and antigen match and he only had to go thru a few more tests. I hope it wasn't my fault he backed out. He said it was because his family wasn't giving him the proper support (maybe because we used to date and his family didn't like the idea) and he hadn't accrued enough vacation days at work. Besides, I wouldn't want someone donating, who's family didn't support him. I understand. It's for the better. Some people thought my ex-boyfriend was doing it for the wrong reasons, maybe he was. I'll never know, but it doesn't matter now. Our family has to focus on finding the right donor.
My dad's has someone who is willing to look into paired donation.
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