My brother was tested Thursday for PKD. He wanted to donate to my dad and had to be tested to go forward. My mom, grandma and me went with him, even though he wouldn't know right away we wanted to be there for support. I would want people with me. I was nervous while driving to the hospital. I was nervous for him. I was nervous for our family. I was nervous for what would happen if he did or didn't have PKD. If my brother didn't have PKD he could donate! It would mean a kidney for my dad! It would mean my big brother would have surgery to give my dad a kidney. That's HUGE. If my brother had PKD he couldn't donate to my dad...and he would be diagnosed with PKD, like my grandfather, like my dad and uncle. A five minute sonogram would determine alot.
We found out Saturday that my brother has PKD.
I am so pissed my brother has this. He is so optimistic and was so ready to doante. He said "when we find out and I'm clear let's get the hacksaw out and do the transplant now." And here is how it happened. The nephrologist called my dad! They didn't even tell my brother. They told my dad. My dad had to call my brother and tell him!
1 comment:
Sorry to hear the news about your brother. I read in the comments section that you're in the process of getting tested yourself. I sincerely hope that everything works out for you. This is what makes PKD such a frustrating disease. Because it it genetic, the people who make the best potential donors - your family - are the ones who are likely to also have PKD.
My wife has PKD and we happen to have identical twin sons. Identical twins, in general, can freely donate kidneys to each other without any need for immunosuppressive drugs. Because they have the same DNA, they would be each other's perfect donor. But, the cruel irony is that because the disease is genetic, if one of them happens to have PKD, the other one does too.
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