A few developments since I last wrote...My brother was ready to go forward to see if he could donate and they started him with a sonogram of his kidneys. The Saturday before Christmas we found out that he has PKD too. He took the news well. He said before the sonogram that if he found out he has it, he's had it all his life and nothing will change. He is making some modifications to his diet...lower protein, watching the sodium etc. He also exercises regularly, which is more that I can say for myself.
After that it took me a while to decide what I should do. My brother said he felt better knowing and he wants to get involved in one of the studies. He is truly an inspiration for having a good attitude. Part of me wanted to leave it all in the back of my head, but that wasn't happening. I kept thinking about it and it was hard not to, considering my dad needs a donor and my brother has it. After New Years I initially told the transplant team I didn't want to be in the running any more. The whole being considered high risk pregnancy if you donate a kidney scared me, I want to have kids. Then I thought.... even if I don't donate a kidney but I have PKD I would also be considered high risk. I decided to call the transplant team and go to the next step.
I had a sonogram of my kidneys and the docotors didn't see anything. Which is good news, but to make sure they wanted me to have the CT Angiogram. I just got back from that. I really tend to frak about things, but it wasn't as bad as I anticipated. When the dye goes in it feels like a really hot hot flash and it also felt like I peed my pants. But the nurses warn you of that so you know you didn't actually pee. Then my boyfriend took me to lunch, it was nice to just chill out after all the anticipation before going back to work.
Next we have to do genetic tested for the last step in determining nothing shows up in my kidneys in five years. They still think I could be to young and that it just hasn't shown up yet.
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